I never would have thought or expected it. A few hours after Abigail was born and the pediatrician came to examine her I heard the words “heart murmur”. I didn’think any thing of it. Heart murmurs can be a normal thing right? My worries went away when no follow up was scheduled. “She must be fine” I thought.
Time passed and I talked to some friends. They told me to schedule an appointment with our pediatrician to double check. Sometimes heart murmurs can be a sign of bigger problems. I started to get nervous and set up an appointment. They day came and for sure I was told, yes, that’s a large heart murmur. And then he said “I think she has a hole in her heart.”
We had to go to the other side of the country to see a pediatric cardiologist. There is not a single one in Arusha. We sat in an overcrowded room of people with all sorts of different heart problems and waited for our number to be called. When we finally got in with the Dr and saw and heard Abigail’s heart during her echocardiogram we knew something was wrong. What the Dr said next tore my heart into a thousand pieces.
“She has a large hole and a moderate hole in her heart. There is no way they will be able to heal on their own. Surgery is your only option.”
My heart sank and the tears started leaking out of my eyes. How is this possible? Why my little girl? Why was she the 1 in 100 to be born with these Congenital heart defects. There is no reason or any answers to why her. There is still no known cause for congenital heart defects.
Abigail is almost 6 months old. She is barely 11 lbs. Because of these holes in her heart, her heart is constantly in overdrive making it very hard to gain weight. It’s like she’s running a marathon all the time. Since our appointment in January she has been on diuretics to help prevent heart failure. She gets tired when nursing and so it’s hard for her to even get full. She still needs to nurse every 2 hours to be satisfied.
I have spent hours and hours researching where we could have surgery. It’s not an easy thing here in East Africa. We have found a mission hospital outside of Nairobi Kenya through a friend. They have an American surgeon team coming the first week of May and have already put Abigail on the schedule. The only thing standing in the way of our daughter having this life saving surgery is $3500.
The place where I have volunteered during my three and a half years here in Tanzania, has offered to help fundraise with us. Please message me or email me at email@example.com for a way to donate that is tax deductible. If you don’t care about that, feel free to donate at http://www.paypal.me/abigailsheart
Thank you for your prayers and support to save Abigail’s life.